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“But you don’t look sick…”

Posted on April 3, 2017 by Rania

Please, tell me, what does sick look like? I’ll make sure to try get it right next time!

Fatigue…

Posted on March 20, 2017March 20, 2017 by Rania

How I cope…

Let’s set the scene…

Posted on May 31, 2016March 3, 2017 by Rania

How it all began..

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The face you make when your fingers seize up, you have an involuntary muscle spasm and your morning coffee meeting turns into you explaining why you were so easily able to spill coffee on yourself 🤦🏻‍♀️ • I like to think I’m super funny and great in these situations and explain “well ‘dah’ clearly I needed this coffee” 😂 then go cry in the toilets 😑 (I didn’t actually cry just more annoyed I have to dry clean my dress again) • I find these involuntary muscle spasms so funny because they happen at the MOST INOPPORTUNE TIMES. Like the other day when I scared the absolute shit out of my mother in law because I got a killer one in my ribs and jumped like someone had just shot me through the window or while getting my nails done and I had to pull my beautifully gelled finger out of the light to clutch my neck 😖 I don’t know if she was concerned for me or more annoyed that she needed to re-do that finger 😂 • But they come hard and fast. They take your breath away and quite literally feel like your either being shot or knifed (I’m not sure which is worse) 🔫🔪 I find the only thing that helps is stopping and taking deep breaths until the pain goes away. • From my many questions to my neuro these spasms are known as Spasticity. It can happen because of an imbalance in the electrical signals coming from the brain and spinal cord, often when MS has damaged the nerves there. This makes your muscles contract on their own and makes them insanely tense. They’re also known to get worse when it’s too hot or cold. • I personally think mine have been happening more than usual because of the heat. It’s been so hot in Melbourne lately #heatwave The best method I use to help minimise these spasms is having myotherapy every fortnight to stretch out & massage those tense muscles. I find it so helpful & would not be able to carry on with life without my myo, she is a God send & quite literally keeps my muscles moving. • I’ve had a few questions about this recently & not many people know this is a totally shit symptom of MS so I thought I’d let you know you’re not the only one looking like you’re re-enacting Michael Jackson’s Thriller in the middle of the street 🧟‍♀️ #thisisms

Thursday got us like, it’s almost Friday 💁🏻‍♀️ • It’s actually kind of nice going back to work while many people are still on holidays. I mean although I’d much rather be lazing by the pool it gives you a sense of calm and time to feel as though you’re getting ahead. • You leave work at a reasonable time, traffics bearable, you have time to cook good dinners and then prep your lunch without feeling like you have time chasing you. It may seem like a total drag going back when everyone is still flooding your feed with beach snaps but it definitely puts you in good stead for when it ramps up, when everyone comes back, school starts and shit really gets real. • Totes feeling ready for the weekend because lol #fatigue but also feeling super happy with the progress this week and sahhhh ready for next week already. When can you EVER say you feel that? #silverlining • Hope everyone has an amazeballs Thursday and P.S how cute is Charli 😍

Back to work tomorrow 😱 So many feels about this!!! Not feeling as rested as I’d hoped to be but nevertheless we persist 💪🏽👊🏽 • Glad I got to spend quality time with these cuties at my favourite place #beach 🏖 now to get back into routine and try and wake at 6am tomorrow 😴😴 • Good luck to everyone going back to work tomorrow and here’s to kicking our 2019 goals #letsdothis

Let’s talk New Years resolutions. I have been asked a lot about resolutions and to be honest I never set them. I prefer the term intentions, I intend on bla bla bla (insert your intention here) so that if it doesn’t go to plan you pivot your intention. When it’s a resolution it seems so much more set in stone, harder to maintain and then when there is a bump in the road it’s far more difficult to keep it going and more often then not come the last week of January you’ve already given up on the diet, the smoking less, exercising more. • I set intentions for the day, the week and the year. I intend for my health to be better this year and day by day, week by week I’ll set smaller goals to achieve my years intention. I intended for 2019 to start better and thank you all so much for your messages after my post yesterday. I am actually ok (just maybe grew a few grey hairs) but my dad had a heart attack on Jan 2nd. He’s doing much better and thanks to my legend of a mum who knew the signs and acted quickly we are all still one happy family 🙏🏽 So although there’s been a bump in my already set intention of 2019 being better overall it doesn’t mean I can’t amend it now. • This weeks intentions have been to try and maintain stress levels so I don’t fall back into being unwell. Managing stress is so important with MS and this is a constant intention that is always high on the list and something that should always be prioritised. • Another lesson learnt this week is always trust your gut!!! If you feel something is wrong act on it immediately it could be the difference between life and death ❤️

When 2019 doesn’t start as planned what do you do 🤷🏻‍♀️ • Give up and think that this will be the trajectory for the rest of the year or thank God and believe that it can’t get any worse than this so 2019 is definitely going to be better!!! • Choose to think the latter and don’t give up so easily. Because even when it feels easier to throw in the towel early in the first round it will feel so much better to show the next few rounds who’s boss. • There is still 362 rounds to go. Let’s do this 👊🏽

Sums up this year perfectly 🤪 Laters 2018 - it’s been real but thank you NEXT 🙋🏻‍♀️ • 2019 I have a feeling about you, I know you’ll be good 🙏🏽 • As we close the book on 2018 I just also wanted to say a HUGE THANK YOU to everyone who’s played a massive role in helping @majic35 and I individually raise over $15,000 for people living with MS. This is not including the millions that were raised through the @msdreamhomelottery and all the other major events held by @msgetinvolved We couldn’t do it without everyone’s help and we are so excited for what 2019 will bring ❤️ • I hope everyone has a FABULOSO New Years and stay safe 💃🏻

Recent Posts

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